About Us

Our youngest son was born with a genetic disorder called tuberous sclerosis.  If you’ve never heard of it, don’t worry, neither had we.  This blog was started to chronicle our lives while dealing with this diagnosis and what it means for us and our son.  Hopefully, we’ll be able to spread the word about tuberous sclerosis and help people learn about a “special” family as well as help other families know that they are not alone in this journey.

Mom and Dad, Little Brother and Big Brother